![]() "In general, is a sign of diaphragm-related problems," said Dr. Since then, Sands has tried a slew of home and alternative remedies for his hiccups, including special drinking cups, hypnotherapy, yoga and herbal medicines from Malaysia. "When started, it was completely random, out of the blue, for no reason," said Sands, whose first bout of chronic hiccupping occurred in February 2007. No Cure for HiccupsĬhristopher Sands, 25, has been battling hiccups, normally a mundane, short-lived biological function, for more than two years. ![]() "It's discomfort, it's not debiblitating," Sosenko said. Still, Sosenko admitted that the varicose veins that she has can hurt and excessive walking can be taxing because of the length difference between her legs.įortunately, Sosenko's condition is not painful nor has it prevented her from any of her favorite activities, such as yoga. "That will hurt no matter how much progress I make, no matter how confident I feel." "If a perfect stranger says something cruel, it hurts," Sosenko said. Others might notice and not comment and still others might ask her about it. Sosenko said that many people she meets might not notice her lumpy back or that she drags her right leg slightly when she walks. Sosenko's right leg is slightly larger than her left, her back is uneven with fat deposits, and a plum-colored mark from enlarged blood vessels under the skin, called a port-wine stain, stretches from her torso to her right thigh. No one doctor can take care of these patients." "These patients used to be medical nomads. John Mulliken, co-director of Vascular Anomalies Center at Children's Hospital Boston. "There is tremendous confusion ," said Dr. Excessive bone growth can lead to amputation of the enlarged limb.īecause KTS falls between specialties - vascular, orthopedic and lymphatic - the disorder was often misdiagnosed and treated inappropriately. Symptoms can vary widely and, depending on the severity of the condition, can include pain, blood clots, seizures, blindness and mental retardation. "In terms of the medical issues, I never felt like I had them." "It was always about my appearance, which is, in a lot of ways, fortunate," Sosenko said. If she dresses carefully and positions herself properly, Carla Sosenko, 32 from Brooklyn, N.Y., knows no one will be able to see any of the physical flaws that she works hard to conceal.īut, unlike the bumps and bulges that many people would like to hide, Sosenko's are the result of a rare congenital disorder called Klippel-Trenaunay Syndrome (KTS). ![]() I lose him for that amount of time, because he's not the same kid." Klippel-Trenaunay Syndrome "He'll only want fast food, and someone has to go get his food, and he's basically bedridden," she said.Īs disabling as it is to Eric, who had to miss a lot of school, his condition is also debilitating for Lori. Lori Haller always makes sure someone is with Eric during his periods of sleep. "The're cognitively impaired, they have an increased appetite and decreased inhibitions," said Silber. While experts don't think sufferers are in any danger during their sleep episodes, they probably shouldn't be alone. "They tend to become less active and want to sleep more, and they're kind of confused and in a cloud," said Schoumacher. There are usually signs that an episode is coming. ![]() The only way to really address the symptoms of Kleine-Levin Syndrome is to adapt to it. It tends to respond to lithium or depakote." Rosalind Cartwright, professor emeritus at Rush University Medical Center and author of "The Twenty-Four Hour Mind." "Then, it's treated as if a mood stabilizer is needed. In partnership with Carleton University's Future of Journalism Initiative and journalism schools across Canada, Maclean's is striving to capture the richness of each life lost in elegant obituaries."If it's reversed naturally without medication and it's followed by three or four nights of complete insomnia, then it's a bipolar variant," said Dr. Our goal: to pay tribute to everyone who has died of COVID-19 in Canada, and every Canadian who has died of the disease abroad. They Were Loved is an obituary project to commemorate thousands of coronavirus victims, as well as to mark this historic moment in Canadian history. Public health guidance around social distancing has resulted in restrictions around traditional mourning customs and rituals-heart-wrenchingly, many were unable even to say goodbye. Canada has already lost more than 20,000 people to the pandemic, with the number ticking steadily upwards each of those losses has cascaded through families and communities, leaving many more thousands bereaved. The magnitude of COVID-19's impact on Canadians' lives is difficult to fathom. ![]()
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